mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology
Mobile health technology is emerging to take a prominent position in managing chronic diseases. These technologies aim to enhance patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies.
Co-Authors: S.F. Seys, J. Bousquet, C. Bachert, W.J. Fokkens, I. Agache, M. Bernal- Sprekelsen, I. Callebaut, L.O. Cardel, S. Carrie, P. Castelnuovo, R. Cathcart, J. Constantinidis, L. Cools, M. Cornet, G. Clement, J.C. de Sousa, T. Cox, M. Doulaptsi, P. Gevaert, C. Hopkins, V. Hox, T. Hummel, W. Hosemann, R. Jacobs, M. Jorissen, B.N. Landis, A. Leunig, V.J. Lund, J. Mullol, M. Onerci, S. Palkonen, I. Proano, E. Prokopakis, D. Ryan, H. Riechelmann, J. Saevels, C. Segboer, K. Speleman, E.A. Steinsvik, P. Surda, P.V. Tomazic, O. Vanderveken, L. Van Gerven, T. Van Zele, B. Verhaeghe, K. Vierstraete, S. Vlaminck, J. Wilkinson, S. Williams, B. Pugin, P.W. Hellings
