Real-life Assessment of Chronic Rhinosinusitis Patients Using Mobile Technology
The mySinusitisCoach project by EUFOREA
Chronic rhinosinusitis (CRS) is a chronic inflammatory disease associated with a substantial personal and socioeconomic burden. Monitoring of patient-reported outcomes by mobile technology offers the possibility to better understand the real-life burden of CRS. This study reports on the cross-sectional evaluation of data from 626 users of mySinusitisCoach (mSC), a mobile application for CRS patients. Patient characteristics of mSC users were analysed as well as the level of disease control based on VAS global rhinosinusitis symptom score and adapted EPOS criteria.
Real-life data confirm the high disease burden in uncontrolled CRS patients, clearly impacting quality of life. Sinus surgery improves patient-reported outcomes, but not in patients with a history of more than 3 procedures. Mobile technology opens a new era of real-life monitoring, supporting the evolution of care to- wards precision medicine.
Co-Authors: Sven F. Seys, Shana De Bont, Wytske J. Fokkens, Claus Bachert, Isam Alobid, Manuel Bernal-Sprekelsen, Leif Bjermer, Ina Callebaut, Lars-Olaf Cardell, Sean Carrie, Paolo Castelnuovo, Russell Cathcart, Jannis Constantinidis, Leen Cools, Marjolein Cornet, Tony Cox, Lieve Delsupehe, Jaime Correia-de-Sousa, Geert De Vos, Zuzana Diamant, Maria Doulaptsi, Philippe Gevaert, Claire Hopkins, Valérie Hox, Thomas Hummel, Werner Hosemann, Raf Jacobs, Mark Jorissen, Anette Kjeldsen, Basile N. Landis, Winde Lemmens, Andreas Leunig, Valerie Lund, Gert Mariën, Joaquim Mullol, Metin Onerci, Susanna Palkonen,
Isabel Proano, Emmanuel Prokopakis, Dermot Ryan, Herbert Riechelmann, Pernilla Sahlstrand-Johnson, Sanna Salmi-Toppila, Christine Segboer, KatoSpeleman, AndreasSteinsvik, PavolSurda, Peter-ValentinTomazic, Olivier Vanderveken, Benedicte Verhaeghe, Martin Wagenmann, Laura Van Gerven, Thibaut Van Zele, Jan Verfaillie, Kathie Vierstraete, Stephan Vlaminck, Benoit Pugin, Peter W. Hellings
