Patient Advisory Board for Chronic Rhinosinusitis – A EUFOREA Initiative
Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients’ quality of life, no European patient organisation that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to understand the real-life needs of patients better, to raise awareness at the political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th of June 2018 and provides an outline of the key objectives for the future.
Co-Authors: B. Pugin, L. Deneyer, C. Bachert, I. Alobid, J. Bousquet, G. De Carlo, W.J. Fokkens, S. Gane, C. Hopkins, C. Holzmeister, C. Langdon, E.S. Lourijsen, V.J. Lund, G. Mariën, M. Mavris, J. Mullol, C. Pereira-Pérez, P.V. Tomazic, O. Vanderveken, P.W. Hellings, S.F. Seys
